My name is Alex Boettger and I am 10 years old. I was born on the 1st of September 2001. With the help of my family and friends including my trustees I have been given a voice to tell people my story and my dreams in the hope that people will be inspired. Together we have written this short story.

My Body and Congenital Muscular Dystrophy

Just before my 2nd birthday I was diagnosed with Congenital Muscular Dystrophy. My mum struggled for the first 3 months of my life trying to find out why I was not developing at the same rate as other children were. She was told that I was a low tone baby, which lead to physiotherapy to try and increase my muscle strength, however I still didn’t walk as I should’ve.

Congenital Muscular Dystrophy means every muscle in my body is weak, so I am now in a wheelchair, a psychedelic coloured one, and need help with day to day tasks. The little muscles that help with my breathing are also affected and it makes me breathe differently. My heart is also a muscle but so far so good. I might be at risk of future issues with my health. My family has tried many types of therapy to ensure that I am developing as strongly as possible, and I have had operations to do the same. However the reality is that this physical disability has taken control of my body.

My Interests and dreams

I now have a guide dog, Falkor, who helps me turn on lights as I cannot stretch to reach the switch or pick up my pencil off of the floor when I am in my wheelchair.

I love computers, books, swimming, playing with my dog and horse riding. I feel like when I am on a horse I can do anything, but off the horse I feel bound to a wheelchair. When I grow up I want to be an independent young man who works in politics, but that’s just today’s choice!
I have chosen to live my life as much as any other boy would at ten years old. I of course have good days and bad days but I don’t want to be known as the boy with Congenital Muscular Dystrophy. I would much rather be Alex Boettger, the boy who did a 21.1km race, the Milkwood half Marathon being pushed by my mum, oh and happens to have Congenital Muscular Dystrophy.

The Trust and Me

I have helpful friends that have set up a Trust for me as we all want my voice to be heard because although my body is weak my mind is not. I attend Sun Valley Primary School which is a mainstream school on the South Peninsula and I am in grade 4 and am getting good grades.

My mum says I have a fighting spirit and an awesome smile, and my brother is jealous that I have such a special dog! I don’t like to hear the word “shame” as I believe in the positive in life and want to look to a bright future.
You too can help me to have the chance that every other child has.

You can make donations to:

Name: Alex Boettger Trust
Bank: Nedbank Current Account
Account No.: 1025616170
Branch Code: 125009
Bank Address: NEDBANK
Shop G55
Longbeach Mall
South Africa
Swift Code: NEDSZAJI

Please mark your name and surname as a reference.

Our family motto is:

As long as you want to achieve or attain something we will help you to achieve it!

Being a family means we've got each other's back! …oh and my mom always says, “Don’t Try, DO!” I would not change my family for the world.

Thank You Mom, Dad and Big Brother Dylan.